[Adolescent and Young Adults (AYAS) brain tumor national Web conference. On behalf of ANOCEF, GO-AJA and SFCE societies].

Abstract

The skills of adult versus pediatric neuro-oncologists are not completely similar though additive. Because the tumors and their protocols are different and the tolerance and expected sequelae are specific. Multidisciplinary meetings including adult and pediatric neuro-oncologists are warranted to share expertise. Since 2008, a weekly national web based conference was held in France. Any patient with the following criteria could be discussed: Adolescent and Young Adults aged between 15 and 25 years, and any adult with a pediatric type pathology, including medulloblastoma, germ cell tumors, embryonic tumors, ependymoma, pilocytic astrocytoma.

RESULTS:

Attendance during the year 2015 was as follows: 42 meetings were held; the median number of cases discussed at each meeting was 4 (1 to 8); the mean number of attendants was 7 (2 to 12). One hundred and sixty-eight cases concerning 121 patients were discussed. Mean age was 30 years old (7 to 67). Forty-eight percent were discussed at diagnosis. The patients had mostly medulloblastomas (40%), germ cell tumors (11%), ependymomas (11%), pineal tumors (7%) and embryonal tumors (8%). The rate of inclusion in protocols was increased since the opening of this web conference, especially for the germ cell tumor SIOP protocol that is opened without age restriction, and in RSMA standard risk or MEVITEM relapse adult medulloblastoma protocols.

CONCLUSION:

Multidisciplinary Web conference for AYAs is feasible and increases the inclusion rate in protocols. It should be developed further.

• Authors: Didier Frappaz, Marie-Pierre Sunyach, Emilie Le Rhun, Marie Blonski, Valérie Laurence, Alice Bonneville Levard, Hugues Loiseau, David Meyronnet, Arnaud Callies, F Laigle-Donadey, Cecile Faure Conter, au nom de l’ANOCEF, GO-AJA, de la SFCE
• Journal: Bulletin du cancer (Bull Cancer) Vol. 103 Issue 12 Pg. 1050-1056 (Dec 2016) ISSN: 1769-6917 [Electronic] France
• Vernacular Title: La neuro-oncologie des adolescents et adultes jeunes (AJAS) : place d’une RCP nationale. Au nom de l’ANOCEF, GO-AJA et de la SFCE.
• PMID: 27866682 (Publication Type: Journal Article)
• Copyright: Copyright © 2016 Société Française du Cancer. Published by Elsevier Masson SAS. All rights reserved.

Topics

• Adolescent
• Adult
• Astrocytoma (therapy)
• Brain Neoplasms (therapy)
• Child
• Ependymoma (therapy)
• Feasibility Studies
• France
• Humans
• Interdisciplinary Communication
• Medical Oncology
• Medulloblastoma (therapy)
• Middle Aged
• Neoplasms, Germ Cell and Embryonal (therapy)
• Neurology
• Pinealoma (therapy)
• Telecommunications (organization & administration, statistics & numerical data)
• Young Adult