Abstract | OBJECTIVE: The primary aim of this study was to determine if there is a change in the quality of life in pediatric patients with unremitting functional constipation and/or encopresis after undergoing a MACE procedure. METHODS: Patients, ages 5 to 18 years with unremitting constipation and a normal evaluation, including anorectal manometry and colonic manometry, who opted to undergo a MACE procedure were contacted to participate in the study. Patients with congenital anorectal malformations as well as spinal cord disorders were excluded from the study. The patient's parent/guardian completed the PedsQL(TM) Generic Core Scales QOL survey prior to the operation, 6 months, and 12 months after the procedure. RESULTS: A total of 15 consecutive patients meeting protocol criteria were recruited within a period of 20 months. The mean age at the MACE procedure was 9.8 years (range 7.0-11.1). 5 patients were female. The mean QOL score pre- MACE was 64.1. At 6 months post- MACE the mean overall QOL score was 90.2, and it was 92.0 at 12 months. All 15 patients at the 6 month follow up had significant improvement in their QOL (p=1.9 × 10(-7)) and all subcategories of QOL were significantly improved as well. CONCLUSIONS: A MACE procedure is of benefit to otherwise normal pediatric patients who have unremitting functional constipation with failure of medical treatment. Our patients had a significant improvement in all QOL categories and overall QOL.
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Authors | Aileen F Har, Frederick J Rescorla, Joseph M Croffie |
Journal | Journal of pediatric surgery
(J Pediatr Surg)
Vol. 48
Issue 8
Pg. 1733-7
(Aug 2013)
ISSN: 1531-5037 [Electronic] United States |
PMID | 23932614
(Publication Type: Journal Article)
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Copyright | Copyright © 2013 Elsevier Inc. All rights reserved. |
Chemical References |
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Topics |
- Adolescent
- Biofeedback, Psychology
- Cecostomy
(psychology)
- Child
- Child, Preschool
- Chronic Disease
- Combined Modality Therapy
- Constipation
(psychology, surgery, therapy)
- Encopresis
(psychology, surgery, therapy)
- Enema
(methods)
- Fecal Impaction
(prevention & control)
- Fecal Incontinence
(psychology, surgery, therapy)
- Female
- Humans
- Laxatives
(therapeutic use)
- Male
- Postoperative Complications
(etiology, psychology)
- Quality of Life
- Surgical Stomas
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