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Validation of a stoma-specific quality of life questionnaire in a sample of patients with colostomy or ileostomy.

AbstractAIM:
The aim of this study was to determine how socio-demographic and clinical variables affect quality of life (QoL) and to assess the validity of a 20-item scale in a sample of Italian subjects with colostomy, ileostomy and multiple stomata.
METHOD:
A cross-sectional multicentre survey was carried out in Italy between 2009 and 2010 in 73 stoma centres coordinated by the University of Padova. Patients aged 18 years old and above with a history of nontemporary stoma were included in the study. The Stoma Care QoL scale was measured and validated using a Rasch model. Socio-demographic and clinical characteristics were considered in the analyses.
RESULTS:
Two hundred and fifty-one patients were recruited for the study; the mean age was 62 years, 58% were men, 72% had colostomy and 25% ileostomy; approximately 70% of patients had intestinal cancer requiring a stoma, 13% a complication and 10% an inflammatory disease. No significant differences were observed throughout strata in the Stoma Care QoL scale index, except for geographical area, where subjects from south Italy showed a significantly lower index than subjects living in other parts of Italy (P < 0.01). Colostomy and ileostomy patients reported very similar QoL. Cronbach's alpha for the Stoma Care QoL scale was 0.90 (95% CI 0.88-0.92). Rasch analysis supported the viability of the Stoma Care QoL scale questionnaire and showed acceptable goodness-of-fit. Three under-fitted items were observed.
CONCLUSION:
The study confirms the validity of the 20-item Stoma Care QoL scale questionnaire as a research tool for stoma patients but the number of items could be reduced.
AuthorsC Canova, E Giorato, G Roveron, P Turrini, R Zanotti
JournalColorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland (Colorectal Dis) Vol. 15 Issue 11 Pg. e692-8 (Nov 2013) ISSN: 1463-1318 [Electronic] England
PMID23800245 (Publication Type: Journal Article, Multicenter Study, Validation Study)
CopyrightColorectal Disease © 2013 The Association of Coloproctology of Great Britain and Ireland.
Topics
  • Adult
  • Aged
  • Aged, 80 and over
  • Body Image (psychology)
  • Colostomy (psychology)
  • Cross-Sectional Studies
  • Female
  • Humans
  • Ileostomy (psychology)
  • Interpersonal Relations
  • Italy
  • Male
  • Middle Aged
  • Quality of Life (psychology)
  • Reproducibility of Results
  • Surveys and Questionnaires
  • Young Adult

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